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"I have to admit after the first day - the biochemical pathways were soooo confusing and I figured I would never catch on - BUTTT you are an amzing teacher!! Thank you so much!"
"I love the model that you use with patient-teachers in your VMP courses. I am so grateful to learn from you not only in the clinical care of patients but also through the VMP courses you offer. "
"I just learned about your two on-ling electives for metabolic encephalopathy and strokes and finished watching today. I found them a nice review and having the patient component was very interesting and engaging. Geneticists have to think about the whole story and keep rare disorders in mind. Thanks for setting up these online educational sessions. I look forward to seeing more. "
"Thank you for a wonderful educational course"
"Terrific course. Thank you very much."
"Best presentation of conference loved the "what would you do" examples"
"One of the most realistic talks, this is exactly how our access to lab results are significantly delayed 5-7 days and it is a guessing game as wait and/or treat. Really enjoyed it."
"This session was also super helpful, a talk like this at every GMDI would be wonderful. I am one of those who do not have access to labs that process amino acids or carnitine. So thank you!!"
"This was an awesome presentation! I appreciated the interactive nature of this talk- it helped hit your points home."
"The whole program was great... I would get up at 2 am to listen to this... It was presented in a manner that gave logic to a very complex, confusing topic... all the lectures were top notch."
"Loved the setup of this course, I thought it was just right! Very informative, and I will be able to better care for my patient population because of this course!""I thoroughly enjoyed the presentation by Dr. Korson and the porphyria patient. She told a compelling story about her diagnostic odyssey and life after her diagnosis. This was a worthy prelude to Rare Disease Day."
"Thank you so much, this course has been very helpful in addressing some questions/clarifying biochemistry and will help to improve patient care."
"Hearing from people who are directly affected by genetic disease, of the day-in and day-out situations they face, the hurdles they've overcome or how they've gone about managing symptoms gives us an important perspective that makes us more effective health care professionals."