Blog
The posts below are not meant to be recommendations or a substitute for professional advice and services rendered by qualified doctors, allied medical personnel, and other professional services. The responsibility for any use of this information, or for proper medical treatment, rests with you.
Apr 14, 2016, 1:17 AM
Where are we one year later in both Georgia, other states, and on a federal level regarding the use of medical cannabis, CBD and Low THC Oil?
Mar 11, 2016, 3:20 AM
Mitochondrial disease is an umbrella heading that encompasses a number of well described subtypes including MELAS and MERRF.
Feb 5, 2016, 3:33 AM
This week, the mitochondrial and rare disease community suffered a significant blow with the airing of a NBC Chicago Med episode that referred to mitochondrial disease, a scientifically recognized diagnosis effecting thousands of individuals leading to severe morbidity and mortality for affected patients, a waste basket disease.
Jan 18, 2016, 3:36 AM
Rare disease experts are far rarer than the patients they care for and number in the dozens. A previous blog addressed a variety of reasons why the community of physicians is diminishing quickly.
Dec 18, 2015, 3:38 AM
As the year comes to an end in the midst of the hustle and bustle of the Holiday season, I decided to take a few moments to share some thoughts with the general rare disease community about facing a life more complex than others.
Nov 20, 2015, 2:43 PM
"children with ASD and mitochondrial disease typically do better once mitochondrial disease precautions and management are put into place leading to improved quality of life and functionality."
Oct 29, 2015, 2:48 PM
Due to an extremely frustrating conversation with an insurance company just prior to beginning to write a blog I decided that the mitochondrial patient population would likely be better served if I relayed details...
Oct 2, 2015, 2:51 PM
Whether the acute pain from surgical incisions or the burning, searing pain from diabetic peripheral neuropathy, the presence of pain disrupts functioning and leads to a poor quality of life and often depression and hopelessness.