You are not alone and there are many who wish to help. The following are a number of links to foundations or services that can be of help. Please check them out and please contact us if you think something should be added.

MitoAction -

MitoAction's mission is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives. 

To do this, MitoAction's goals include:

  • To improve quality of life for adults and children affected by mitochondrial disease.

  • To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.

  • To provide specific and practical materials that help patients to manage their symptoms

  • To aggregate and connect the international mitochondrial disease community

  • To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.

  • To create tools which empower patients and caregivers to be advocates for themselves or their children.

All are welcome and encouraged to join MitoAction.  Membership is FREE.

GiveForward -

GiveForward's online fundraising pages empower friends and family to send love and financial support to patients navigating a medical crisis. Start a GiveForward page today to ease the burden of your loved one's out-of-pocket medical bills.

  • Easy to Use: In less than 10 minutes you can set up a GiveForward page and start collecting funds from friends and family around the country.
  • Hope: More than just a way to contribute financially to loved ones in need, GiveForward pages allow friends and family to leave words of encouragement and build a community of emotional support.
  • Empowerment: GiveForward empowers friends and family by giving them an answer to the question "What can I do to help?"

Help Mito Kids -

The purpose of this non-profit organization is not only to help spread awareness about Mitochondrial Disease, but to support those families who have been burdened by medical hardship.  At least two-thirds of every donation will go toward medical costs and medical-related travel costs not covered by insurances.  One-third will go toward research for Mitochondrial disease.

Mito Chat Room -

As with anything on the internet, there will be extremes but this area can offer a place to discuss, support, share, and gain information.  

United Mitochondrial Disease Foundation -

To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.

  • Patient and Family Support
  • Research
  • Information and Communications

Dare to Hope -

Works to raise awareness and better the lives of children with rare, critical, chronic and complex medical conditions. Their services include procuring free or low-cost legal and advocacy assistance, furnishing medical supplies not covered by insurance, offering toys to brighten a child’s day, providing community resource referrals and coordination and offering emotional support to families.